Welcome to the Hope for Hollie Foundation Website

Picture courtesy of Venture Photography

In 2007 our beautiful 2 year old daughter, Hollie, was diagnosed with Niemann Pick Type C ('NP-C') an extremely rare and devastating genetic condition which causes neurological decline and childhood dementia and for which there is currently no cure. Less than 50 children suffer from this condition in the UK and only 1000 worldwide.

 

Hollie is the inspiration behind the Hope for Hollie Foundation, a registered grant giving charity which is working to make lifetime a reality for those fighting NP-C. 

 

The Foundation provides grant funding for Research, Support and Education. Its grant funding programme is directly supporting families affected by NP-C with the purchase of specialist equipment, adaptions around the home and other medical or care needs as well as funding the continuation and enhancement of vital support and information services offered by other charitable organisations working in the Niemann Pick field.

 

This website is the central point for the activities of the Hope for Hollie Foundation, registered charity number 1156216. It is regularly updated with upcoming events and fundraising activities and provides information relating to the governance of the charity and NP-C.

 

The Hope for Hollie Foundation is #DreamingofaCure #DreamingofaFuture



GRANT FUNDING AVAILABLE

 

 

Affected Individuals

Do you have a loved one affected by Niemann Pick Type C? Did you know that the Hope for Hollie Foundation can provide grant funding to individuals who have a diagnosis of NP-C, where statutory funding is unavailable, for such things as specialist or sensory equipment, specialist seating, equipment which will aid education, development and communication, adaptions around the home or garden as well as other items that will help towards their medical or social care needs.

 

Organisations and Research Grants

Did you know we also offer grant funding to other charitable organisations working in the Niemann Pick field to help with the continuation and enhancement of vital services as well as providing grant funding to help support research into NP-C.

 

Our full grant making policy and application forms can be found under the 'What We Do' tab above.

 

Hope for Hollie is delighted to have been able to support many families, organisations and research institutions already in a variety of ways so please get in touch if you feel we could be of help.

Short Film 'IMAGINE' inspired by Hollie Carter wows viewers

IMAGINE is a short movie created, produced and directed by talented young film maker Carl Mason. The film which is ten minutes long follows the story of Millie a little girl fighting Niemann Pick Type C. The film highlights the struggles faced by Millie's family in coming to terms with the disease and the devastating impact it has on Millie. This unique piece of NP-C awareness is supported and funded by the Hope for Hollie Foundation, Niemann Pick UK and the International Niemann Pick Disease Alliance.  Carl Mason was inspired by close friend Hollie Carter who was diagnosed with NP-C at age 2. 

 

 

WATCH OUR AWARENESS FILM

ITV ANGLIA NEWS FEATURES HOPE FOR HOLLIE FOUNDATION

Hollie, Zayn and Joshua, Milton Keynes

 

On 15 April 2014 ITV Anglia News ran a headline feature on the new Hope for Hollie Foundation and the three children in Milton Keynes affected by this devastating condition. You can read the full story and view the footage of the story by clicking on the link below.

 

http://www.itv.com/news/anglia/2014-04-15/mother-sets-up-charity-to-help-children-with-rare-condition-often-known-as-childhood-alzheimers/

Hollie's Trailer Is On The Road!

Courtesy of Trailer Resources, the Hope for Hollie campaign is now taking to the road with their Niemann Pick awareness campaign.  On the 9th June ‘Hollie’s Trailer’ was launched and will travel between various locations around the country and possibly Europe.