Welcome to the Hope for Hollie Foundation Website
In 2007 our beautiful 2 year old daughter, Hollie, was diagnosed with Niemann Pick Type C ('NP-C') an extremely rare and devastating genetic condition which causes neurological decline and childhood dementia and for which there is currently no cure. Less than 50 children suffer from this condition in the UK and only 1000 worldwide.
Hollie is the inspiration behind the Hope for Hollie Foundation, a registered grant giving charity which is working to make lifetime a reality for those fighting NP-C.
This website is the central point for the activities of the Hope for Hollie Foundation, registered charity number 1156216. It is regularly updated with upcoming events and fundraising activities and provides information relating to the governance of the charity and NP-C.
The Hope for Hollie Foundation is #DreamingofaCure #DreamingofaFuture
Annual Report for period to March 2015 now available
Impact Report 2014/15
GRANT FUNDING AVAILABLE
Do you have a loved one affected by Niemann Pick Type C? Did you know that the Hope for Hollie Foundation can provide grant funding to individuals who have a diagnosis of NP-C, where statutory funding is unavailable, for such things as specialist or sensory equipment, specialist seating, equipment which will aid education, development and communication, adaptions around the home or garden as well as other items that will help towards their medical or social care needs.
Organisations and Research Grants
Did you know we also offer grant funding to other charitable organisations working in the Niemann Pick field to help with the continuation and enhancement of vital services as well as providing grant funding to help support research into NP-C.
Our full grant making policy and application forms can be found under the 'What We Do' tab above.
Hope for Hollie is delighted to have been able to support many families, organisations and research institutions already in a variety of ways so please get in touch if you feel we could be of help.
Short Film 'IMAGINE' inspired by Hollie Carter wows viewers
IMAGINE is a short movie created, produced and directed by talented young film maker Carl Mason. The film which is ten minutes long follows the story of Millie a little girl fighting Niemann Pick Type C. The film highlights the struggles faced by Millie's family in coming to terms with the disease and the devastating impact it has on Millie. This unique piece of NP-C awareness is supported and funded by the Hope for Hollie Foundation, Niemann Pick UK and the International Niemann Pick Disease Alliance. Carl Mason was inspired by close friend Hollie Carter who was diagnosed with NP-C at age 2.
WATCH OUR NEW AWARENESS FILM
Sam Bailey Gives Hollie's Best of British Ball the X Factor!
On Saturday 13 June 2015 the Hope for Hollie Foundation hosted its 8th annual charity ball at Doubletree by Hilton, StadiumMK. This year’s ball took on a Best of British theme and was attending by over 220 guests. The evening included a show stopping performance by 2013 X Factor Winner Sam Bailey who treated guests to a live performance of tracks from her new album. Sam and her husband Craig were in attendance throughout the evening and Sam was keen to get involved in many of the fundraising activities throughout the night which included a dance off between two teams of guests on the dance floor.
The evening kicked off with a superb ballroom dance performance by JustDance Academy. The event was hosted by Paul Fitzgerald and Gavin Pomfret who kept guests amused throughout the course o f the evening.
In addition the evening saw the premiere of short film IMAGINE created, produced and directed by talented young film maker Carl Mason. The film which is ten minutes long follows the story of Millie, a little girl affected by NP-C and highlights the struggle of her family coming to terms with the disease and the devastating impact it has on Millie. The film was supported and funded by the Hope for Hollie Foundation, Niemann-Pick UK and the International Niemann Pick Disease Alliance . This will now become part of a global awareness campaign for all three charities and its producer Carl Mason through social media. Since the films release onto social medial on Saturday it has already had in excess of 4,000 hits and growing.
Early indications are that the fundraising ball is on target to have raised in excess of £12,000 to help support the work of the Hope for Hollie Foundation.
ITV ANGLIA NEWS FEATURES HOPE FOR HOLLIE FOUNDATION
On 15 April 2014 ITV Anglia News ran a headline feature on the new Hope for Hollie Foundation and the three children in Milton Keynes affected by this devastating condition. You can read the full story and view the footage of the story by clicking on the link below.