The Hope for Hollie Team
Dana Smith is a close family friend of Helen & Pete having become involved with Hope for Hollie after attending a charity ball in 2009. Dana works tirelessly to raise awareness of Niemann Pick Disease the work of the Foundation on social media. She is heavily involved in event organisation for the Foundation including its annual charity ball.
Roger Widdecome became involved in Hope for Hollie in 2008 after reading Hollie's story in the local press. Roger helped launch the Hope for Hollie awareness campaign and raise its profile within the local community. He has since become the official Hope for Hollie photographer helping to capture great images throughout the year!
Linda Skellern has been a childminder for Hollie since she was 1 year old. Throughout this time she has become a big part of the family having also looked after Hollie's two brothers from a young age. Linda joined the Hope for Hollie commitee in 2013 and has been kept busy ever since with many fundraising and awareness events!
Nadia Slatch is the newest Trustee, having joined the Board in January 2015. Nadia lives in Milton Keynes with her husband and three children. Her youngest son, Zayn is two years old and also has Niemann Pick Type C. Nadia has a passion, dedication and commitment to raise public awareness of NP-C and to help the charity fulfil its charitable objects.
Holly has been involved with Hope for Hollie since 2010 when she performed at the first Hope for Hollie Ball. Holly helped record the Hope for Hollie charity single 'The Climb' in 2013 which also featured Hollie and her friends.
Holly is an extremely talented local vocalist who has had leading roles in Aylesbury Panto for the past few years. In December 2014 Holly will be Cinderella along side Suzanne Shaw as the Fairy godmother.
Oliver Dean is a local radio presenter who has supported the work of the charity for many years. As ambassador of the Hope for Hollie Foundation Oliver is keep to help raise the profile of the charity and Niemann Pick Type C within the local community and to help the charity expand its reach via social media.
Professor Paul Gissen PhD FRCPCH